2026-04-222025/26:SoU17 · p.4SoUHealth & social services
Rare health conditions
A national strategy for rare health conditions
What's at stake: The decision affects people with rare health conditions, whose specialized care today is fragmented, vulnerable and unevenly distributed across the country, as well as access to expensive medicines for small patient groups.
Case texts and AI reasoning are AI-translated from the Swedish originals; the Swedish text is authoritative.
What the vote decides
The question is whether the government should adopt a new national strategy for rare diagnoses and set up a national coordination function for specialist care, or whether the current, more decentralized arrangement should remain without such a Riksdag initiative.
Yes Yes — the committee proposal
The committee rejects the motions. It holds to the principle of not backing a proposal for a dedicated national strategy for a single group of diseases, since such trade-offs are primarily the responsibility of the regional healthcare principals, supported by the ethical platform and the prioritization tools developed from it.
No No — the reservations
Reservation 9 (S, V, MP)
The reservation calls on the government to adopt a new national strategy for rare diagnoses and diseases, based on a proposal from the National Board of Health and Welfare, and to set up a national coordination function that can support university hospitals' centers for rare diagnoses, translate the strategy into concrete action plans, and reduce regional differences. It also calls on the government to take up the conclusions of the Dental and Pharmaceutical Benefits Agency's report on access to medicines for rare health conditions, and to work for greater national coordination in pricing and negotiations for such medicines.
Summarised from the committee report. Party labels in the summary come from the report, not from the vote.
What do the votes mean here?
Yes The committee proposal: rejecting the motions (keeping things as they are).
No Backing the counter-proposal: reservation 9 by S, V, MP.
Abstain The party marks a position of its own that is not one of the two final alternatives.
The decision would have held
Explicit commitments that contradicted the vote: LLiberalerna
Ja 165–122Ja 154–133
Counterfactual: the parties above are moved to the position their own documents explicitly point at, carrying their whole contingent present. Every other party keeps its real figures, including dissenters and absentees.
How the AI parties would have voted
For each party: what its own plan – election manifesto and party programme – argues for in this case, next to how the party actually voted. The AI can only answer Yes or No; a party can also abstain.
| AI | Vote | Confidence | Evidence | ||
|---|---|---|---|---|---|
| V | No | No 0/16/0/6 | match | confidence: medium | derived |
| S | No | No 0/90/0/16 | match | confidence: medium | derived |
| MP | No | No 0/13/0/5 | match | confidence: high | explicit |
| C | No | Yes 20/0/0/4 | differs | confidence: medium | derived |
| L | No | Yes 11/0/0/5 | differsagainst own programme | confidence: high | explicit |
| KD | No | Yes 14/0/0/5 | differs | confidence: medium | derived |
| M | No | Yes 55/0/0/11 | differs | confidence: low | derived |
| SD | No | Yes 60/0/0/10 | differs | confidence: medium | derived |
Committee proposal
Parliament rejects the motions 2025/26:905 by Alexandra Völker (S) demand 1, 2025/26:1567 by Heléne Björklund (S), 2025/26:3542 by Nils Seye Larsen et al. (MP) demand 43 and 2025/26:3645 by Fredrik Lundh Sammeli et al. (S) demands 62 and 63.
Original (Swedish)
Riksdagen avslår motionerna 2025/26:905 av Alexandra Völker (S) yrkande 1, 2025/26:1567 av Heléne Björklund (S), 2025/26:3542 av Nils Seye Larsen m.fl. (MP) yrkande 43 och 2025/26:3645 av Fredrik Lundh Sammeli m.fl. (S) yrkandena 62 och 63.
Riksdag decision: Parliament rejected 172 proposals in motions from the general motion period 2025. The proposals concern priorities in healthcare and other medical-ethical matters. Parliament considers it to be the responsibility of healthcare principal bodies to assess the need for investments in individual diseases and how care for patients with these diseases should be organized. Furthermore, Parliament refers to ongoing work and previous treatments.
Counter-proposals
- The counter-proposal wants to strengthen research on women's reproductive health and implement the findings in healthcare. (S, V, MP) — Reservation 9
Plan vs actual vote
Every party, in chamber order: what its own plan pointed to, how it voted, and the reasoning behind both. Highlighted rows are where the two differ — but a vote that follows the plan is a result too, so the reasoning is there for every party.
The plan requires equitable and accessible healthcare regardless of where in the country you live and that care be comprehensive and prioritized based on need.
Plan documents: 2022 manifesto · party programme
Reasoning and quotes
The plan requires equitable and accessible healthcare regardless of where in the country you live and that care be comprehensive and prioritized based on need. A national strategy and coordination function for rare diagnoses targets precisely the regional differences the plan wants to eliminate. The requirement for national coordination regarding medicine supply and pricing aligns closely with the plan's requirement for state responsibility for medicines.
Original (Swedish)
Planen kräver en jämlik och tillgänglig sjukvård oavsett var i landet man bor och att vården ska vara heltäckande och prioriteras utifrån behov. En nationell strategi och samordningsfunktion för sällsynta diagnoser riktar sig mot just de regionala skillnader planen vill bort med. Kravet på nationell samordning kring läkemedelstillgång och prissättning ligger nära planens krav på statligt ansvar för läkemedel.
- equitable care throughout the countrydecisive»Sjukvården måste vara jämlik, jämställd och tillgänglig, oavsett var i landet du bor och oavsett vem du är.« (2022 manifesto ↗)“Healthcare must be equitable, gender-equal and accessible, regardless of where in the country you live and regardless of who you are.”
- state responsibility for equivalence»Lösningen är inte att förstatliga sjukvården men för att säkerställa en jämlik vård i Sverige måste staten ta ett större ansvar för att skapa lika förutsättningar.« (2022 manifesto ↗)“The solution is not to nationalize healthcare but to ensure equitable care in Sweden the state must take greater responsibility for creating equal conditions.”
- comprehensive care based on need»Sjukvården ska vara heltäckande, bygga på evidens och prioriteras utifrån behov.« (party programme ↗)“Healthcare should be comprehensive, based on evidence and prioritized based on need.”
- state responsibility for medicines»Vi vill att staten äger apoteken och bygger upp en egen kapacitet för läkemedelsproduktion.« (party programme ↗)“We want the state to own the pharmacies and build up its own capacity for pharmaceutical production.”
The party programme demands increased state responsibility and control over healthcare for national equality and access to medicines throughout the country.
Plan documents: party programme
Reasoning and quotes
The party programme demands increased state responsibility and control over healthcare for national equality and access to medicines throughout the country. The counter-proposal's national strategy and coordination function for rare diagnoses, with reduced regional differences and national coordination on pricing, is precisely such a measure. The principle of equal right to good care according to need strengthens the conclusion.
Original (Swedish)
Partiprogrammet kräver ökat statligt ansvar och kontroll över sjukvården för nationell likvärdighet samt tillgång till läkemedel i hela landet. Motförslagets nationella strategi och samordningsfunktion för sällsynta diagnoser, med minskade regionala skillnader och nationell samordning kring prissättning, är precis en sådan åtgärd. Principen om lika rätt till god vård efter behov förstärker slutsatsen.
- national equality in caredecisive»Ökat statligt ansvar och kontroll över sjukvården för nationell likvärdighet.« (party programme ↗)“Increased state responsibility and control over healthcare for national equality.”
- medicine access throughout the country»Tillgång till medicin, vaccin och andra läkemedel i hela landet.« (party programme ↗)“Access to medicine, vaccines and other medicines throughout the country.”
- care according to need»Lika rätt för alla till god hälso- och sjukvård genom samhällets försorg.« (party programme ↗)“Equal right for all to good health and medical care through public provision.”
- care at the medical forefront»Sjukvård i teknisk och medicinsk framkant.« (party programme ↗)“Healthcare at the technical and medical forefront.”
The election manifesto explicitly promises to improve support for people with disabilities and rare diagnoses regardless of where in the country you live.
Plan documents: 2022 manifesto · party programme
Reasoning and quotes
The election manifesto explicitly promises to improve support for people with disabilities and rare diagnoses regardless of where in the country you live. The counter-proposal's demand for a national strategy and coordination function for rare diagnoses aims precisely to reduce regional differences. The plan also establishes that those with greatest need should be prioritized and points out shortcomings in accessibility and holistic approach for chronically ill.
Original (Swedish)
Valmanifestet lovar uttryckligen att förbättra stödet för personer med funktionsnedsättning och sällsynta diagnoser oavsett var i landet man bor. Motförslagets krav på en nationell strategi och samordningsfunktion för sällsynta diagnoser syftar just till att minska de regionala skillnaderna. Planen slår också fast att de med störst behov ska prioriteras och pekar ut brister i tillgänglighet och helhetssyn för kroniskt sjuka.
- support for rare diagnosesdecisive»förbättra stödet för personer med funktionsnedsättning och sällsynta diagnoser oavsett var du bor i landet« (2022 manifesto ↗)“improve support for people with disabilities and rare diagnoses regardless of where you live in the country”
- care according to need»Människor med störst behov ska prioriteras.« (party programme ↗)“People with greatest need should be prioritized.”
- shortcomings in healthcare's holistic approach»brister det i tillgänglighet, kontinuitet och helhetssyn - särskilt för äldre, kroniskt sjuka« (party programme ↗)“there are shortcomings in accessibility, continuity and holistic approach - especially for elderly, chronically ill”
- equitable care throughout the country»korta köerna till behandling i hela landet« (2022 manifesto ↗)“shorten queues for treatment throughout the country”
The plan wants to shorten queues and strengthen equivalence in care throughout the country and proposes itself national programmes in the care sector, such as a national research programme on women's diseases.
Plan documents: 2022 manifesto · party programme
Reasoning and quotes
The plan wants to shorten queues and strengthen equivalence in care throughout the country and proposes itself national programmes in the care sector, such as a national research programme on women's diseases. The party programme states that conditions may look different but that all shall be secure in getting equivalent care. A national strategy and coordination function for rare diagnoses reducing regional differences aligns with this.
Original (Swedish)
Planen vill korta köerna och stärka likvärdigheten i vården i hela landet och föreslår själv nationella program på vårdområdet, som ett nationellt forskningsprogram om kvinnosjukdomar. Partiprogrammet säger att förutsättningarna får se olika ut men att alla ska vara trygga med att få en likvärdig vård. En nationell strategi och samordningsfunktion för sällsynta diagnoser som minskar regionala skillnader ligger i linje med detta.
- national care programmesdecisive»Vi vill inrätta ett nationellt forskningsprogram om kvinnosjukdomar och stärka den genusmedicinska kompetensen i hela vårdkedjan.« (2022 manifesto ↗)“We want to establish a national research programme on women's diseases and strengthen gendered medicine expertise throughout the care chain.”
- equivalent care»Sjukvården bör ta hänsyn till att människor är olika och att förutsättningarna ser olika ut i olika delar av landet, men alla ska vara trygga med att få en likvärdig vård.« (party programme ↗)“Healthcare should account for the fact that people are different and conditions look different in different parts of the country, but all shall be secure in getting equivalent care.”
- reduced regional differences»Så kortar vi köerna och stärker likvärdigheten i hela landet.« (2022 manifesto ↗)“This is how we shorten queues and strengthen equivalence throughout the country.”
The plan takes no explicit position on what the committee actually decided — often because the committee's reason was procedural. The stance is derived and fully cited, but it does not show the party broke a commitment.
The plan explicitly points out that increased national coordination and management improves healthcare options for rare diagnoses, and that the state should take greater responsibility for the placement of highly specialised care.
Plan documents: party programme · 2022 manifesto
Reasoning and quotes
The plan explicitly points out that increased national coordination and management improves healthcare options for rare diagnoses, and that the state should take greater responsibility for the placement of highly specialised care. A national strategy and a coordination function for rare diagnoses is precisely the arrangement the plan seeks. The requirement for equitable care throughout the country and access to modern medicines point the same way.
Original (Swedish)
Planen pekar uttryckligen ut att utökad nationell samordning och styrning förbättrar vårdmöjligheterna för sällsynta diagnoser, och att staten ska ta ett större ansvar för placeringen av högspecialiserad vård. En nationell strategi och en samordningsfunktion för sällsynta diagnoser är precis den ordning planen efterfrågar. Kravet på jämlik vård i hela landet och på tillgång till moderna läkemedel pekar åt samma håll.
- coordination for rare diagnosesdecisive»vårdmöjligheterna för sällsynta diagnoser och ökar tillgången till hälso- och sjukvård i landets« (party programme ↗)“healthcare options for rare diagnoses and increases access to healthcare in the country's”
- state responsibility for specialist care»Staten ska ta ett större ansvar för sjukvårdens strategiska planering, placering av högspecialiserad vård, beredskap och långsiktig kompetensförsörjning.« (2022 manifesto ↗)“The state shall take greater responsibility for healthcare's strategic planning, placement of highly specialised care, preparedness and long-term skills supply.”
- equitable care»Vården ska vara jämlik.« (party programme ↗)“Care shall be equitable.”
- access to modern medicines»kroniska sjukdomar ska ha tillgång till medicin och medicinsk-tekniska behandlingar som är« (party programme ↗)“chronic diseases should have access to medicine and medical-technical treatments that are”
The stance rests on the quoted commitment in the party's own documents; the actual vote deviated. Click the quote to verify it in the document.
The plan requires fair and accessible healthcare for the entire population and that even people who have difficulty exercising their choice receive good care, and the election manifesto wants to match healthcare needs against capacity across the country through a national healthcare brokerage.
Plan documents: party programme · 2022 manifesto
Reasoning and quotes
The plan requires fair and accessible healthcare for the entire population and that even people who have difficulty exercising their choice receive good care, and the election manifesto wants to match healthcare needs against capacity across the country through a national healthcare brokerage. A national strategy and coordination function for rare diagnoses responds to this. The plan also wants approved medicines to be covered by a solidaristically financed system.
Original (Swedish)
Planen kräver en jämlik och tillgänglig vård för hela befolkningen och att även människor som har svårt att nyttja sin valfrihet får god vård, och valmanifestet vill matcha vårdbehov mot kapacitet i hela landet genom en nationell vårdförmedling. En nationell strategi och samordningsfunktion för sällsynta diagnoser svarar mot detta. Planen vill också att godkända läkemedel omfattas av ett solidariskt finansierat system.
- fair healthcaredecisive»Vården ska vara jämlik och tillgänglig för hela befolkningen.« (party programme ↗)“Healthcare shall be fair and accessible for the entire population.”
- national healthcare brokerage»Inför en nationell vårdförmedling som matchar vårdbehovet med den vårdkapacitet som finns i hela landet – och inte bara i regionen där personen bor.« (2022 manifesto ↗)“Introduce a national healthcare brokerage that matches healthcare needs with the healthcare capacity that exists throughout the country - not just in the region where the person lives.”
- solidaristically financed medicines»särskilt godkännande omfattas av ett solidariskt finansierat system.« (party programme ↗)“special approval is covered by a solidaristically financed system.”
- state leadership of healthcare»Avskaffa regionernas ansvar för sjukvården.« (2022 manifesto ↗)“Abolish the regions' responsibility for healthcare.”
flags: citat_migrerat
The plan takes no explicit position on what the committee actually decided — often because the committee's reason was procedural. The stance is derived and fully cited, but it does not show the party broke a commitment.
The plan uses national strategies and national coordination as tools when healthcare falls short and points to major regional differences in quality and waiting times.
Plan documents: 2022 manifesto
Reasoning and quotes
The plan uses national strategies and national coordination as tools when healthcare falls short and points to major regional differences in quality and waiting times. A national strategy and coordination function for rare diagnoses aims at exactly this and at equitable care regardless of where one lives. The plan does not, however, mention rare diagnoses, so the support is derived.
Original (Swedish)
Planen använder nationella strategier och nationell samordning som verktyg när vården brister och pekar på stora regionala skillnader i kvalitet och väntetider. En nationell strategi och samordningsfunktion för sällsynta diagnoser syftar till just detta och till likvärdig vård oavsett var man bor. Planen nämner dock inte sällsynta diagnoser, så stödet är härlett.
- reduce regional differencesdecisive»Det finns också stora regionala skillnader i kvalitet och väntetider.« (2022 manifesto ↗)“There are also large regional differences in quality and waiting times.”
- equitable welfare across the country»Du ska kunna känna dig trygg med att välfärden fungerar oavsett var i landet du bor.« (2022 manifesto ↗)“You should be able to feel secure that welfare works regardless of where in the country you live.”
- national coordination of care»Inrätta en nationell vårdförmedling som ska hjälpa patienter med lång väntetid att få vård i en annan del av landet där det finns ledig kapacitet« (2022 manifesto ↗)“Establish a national care referral service that should help patients with long waiting times to receive care in another part of the country where there is spare capacity”
- national strategies as tools»Ta fram en nationell strategi mot självmord, med särskilt fokus på barn och unga« (2022 manifesto ↗)“Develop a national strategy against suicide, with particular focus on children and young people”
The plan takes no explicit position on what the committee actually decided — often because the committee's reason was procedural. The stance is derived and fully cited, but it does not show the party broke a commitment.
The plan means that steering via 21 regions creates opacity and unequal care and wants to see a new unified healthcare system where the state takes greater overall responsibility.
Plan documents: 2022 manifesto
Reasoning and quotes
The plan means that steering via 21 regions creates opacity and unequal care and wants to see a new unified healthcare system where the state takes greater overall responsibility. A national strategy and coordination function for rare diagnoses, which reduces regional differences, aligns with that position. The plan also uses national strategies as a tool in the healthcare area itself.
Original (Swedish)
Planen menar att styrningen via 21 regioner skapar otydlighet och ojämlik vård och vill se en ny sammanhållen sjukvård där staten tar ett större huvudansvar. En nationell strategi och samordningsfunktion för sällsynta diagnoser, som minskar regionala skillnader, ligger i linje med den hållningen. Planen använder också själv nationella strategier som verktyg på vårdområdet.
- state overall responsibility for caredecisive»Sverigedemokraterna vill också se över hur staten i större utsträckning kan ta över huvudansvaret för sjukvården, med utgångspunkt i framgångsrika exempel i Norge och Danmark.« (2022 manifesto ↗)“Sweden Democrats also want to review how the state to a greater extent can take overall responsibility for healthcare, based on successful examples in Norway and Denmark.”
- regional steering creates unequal care»Huvudproblemet handlar i betydande utsträckning om att styrningen via 21 olika regioner skapar otydlighet, målkonflikter, successivt ökande administration och brister i kompetensförsörjningen.« (2022 manifesto ↗)“The main problem is largely that steering via 21 different regions creates opacity, conflicting objectives, progressively increasing administration and shortfalls in workforce supply.”
- unified healthcare»För att åstadkomma det krävs en ny sammanhållen sjukvård i Sverige.« (2022 manifesto ↗)“To achieve this requires a new unified healthcare system in Sweden.”
- national strategies as tool»Ta fram en nationell strategi för det fortsatta arbetet med psykisk hälsa« (2022 manifesto ↗)“Develop a national strategy for continued work on mental health”
The plan takes no explicit position on what the committee actually decided — often because the committee's reason was procedural. The stance is derived and fully cited, but it does not show the party broke a commitment.
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Sources and documents
- The committee report on riksdagen.se (2025/26:SoU17)
- Committee report full text (HD01SoU17)
- Per-MP voting data (API)
- Case status (API)
Documents under consideration
- Motion 2025/26:1081 — Tillgång till profylaxkurs för alla blivande föräldrar av Sofia Skönnbrink (S)
- Motion 2025/26:1095 — Intersexpersoners rätt till samtycke av Anna Lasses (C)
- Motion 2025/26:1188 — Nationella riktlinjer för EDS och HSD av Ulrika Heindorff (M)
- Motion 2025/26:1190 — Fortsatt ökning av kunskapen om ME/CFS av Ulrika Heindorff (M)
- Motion 2025/26:1198 — Nationella riktlinjer för diagnostik och behandling av lipödem av Ulrika Heindorff (M)
- Motion 2025/26:1206 — Enhetliga rutiner för igångsättning - vård på lika villkor av Caroline Högström (M)
- Motion 2025/26:1222 — Ge fler möjligheten att donera av Eva Lindh m.fl. (S)
- Motion 2025/26:1237 — Utvecklad vård och behandling av sköldkörtelsjukdomar av Ingela Nylund Watz (S)
- Motion 2025/26:1262 — Stärkt arbete mot kvinnlig könsstympning av Louise Thunström m.fl. (S)
- Motion 2025/26:1515 — Utredning om assisterad dödshjälp av Kristina Axén Olin (M)
- Motion 2025/26:1547 — Aktiv dödshjälp av Alireza Akhondi (C)
- Motion 2025/26:1567 — En nationell samordnare för sällsynta diagnoser av Heléne Björklund (S)
- Motion 2025/26:1574 — Tillgång till rätt behandling för patienter med lipödem av Marianne Fundahn (S)
- Motion 2025/26:1579 — Rättighet att söka genetiska halvsyskon av Lina Nordquist och Jakob Olofsgård (båda L)
- Motion 2025/26:1585 — Förbättrad övergångsvård av Malin Danielsson (L)
- Motion 2025/26:1623 — Minska risken för förlossningsskador av Magnus Manhammar och Heléne Björklund (båda S)
- Motion 2025/26:1686 — Finansiering av epilepsiregistret av Margareta Cederfelt (M)
- Motion 2025/26:1819 — Undersökning av bröstcancer av Peter Hultqvist (S)
- Motion 2025/26:1848 — Jämlik transplantationsvård i Sverige av Anna-Belle Strömberg m.fl. (S)
- Motion 2025/26:1861 — Jämlik vård vid ätstörningar i hela landet av Anna Wallentheim (S)
Source: The Swedish Parliament